Josy
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Member Joined Jan 8 2009
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Chicago, Il
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About Me
My name Is Josefa, but most of my friends call me Josy. i am 30 years old and I was diagnosed with Marfan at age 9. I have two lovely girls Nicole 7 and Melanie 6 and both have Marfan as well. I am the chairperson of the NMF Hispanic Network and I am very proud of you Conner for wanting a space just for Marfan kids. Keep up the great work cause we need more people like you in this world. Post a Comment2 Comments
Hey Hollie, my Marfan is under control with the heart meds but I go in for cardio check-ups every three months. My daughters are hanging in there too. My youngest one is part of the losartan-vs-atenolol trial and my oldest might require eye surgery again cause her eye muscle seems to be stretching a lot. But other than that we're all good :o)
hi Josy!! how is your Marfan doing? hope your kids are going good!!
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