| Members | Join Site |
Anyone of any age can become a member. The website member age template ends at 1995. We are going to try and change that. In the mean time if you were born after 1995 just select any age. Once you are a member click "edit profile" then click "edit account". Click on the "Don't display my age" checkbox. This will stop the site from showing your wrong age. If you would like to share your age with us then feel free to put it in the "About Me" section. When you are done click on "Submit" at the bottom of the page are you are all set 
| All Members (15) |
|
|
Conner Site Owner Male |
About Me
I have Marfan Syndrome |
|
Conner's Mom Moderator Female |
About Me
|
|
Conner's Dad Moderator Male |
About Me
|
|
helenna Member Female |
About Me
Hello ... I am 18 years old.
I love music and I play guitar aswell as Drums. I am in a Band and enjoy it very much. I do ballroom dancing . I love hiking and camping so i am not a city person at all.
hahah Dont know what to say ? |
xoMusicLIFExo Member Female |
About Me
|
|
rachel Member Female |
About Me
I am 9 years old, and I love to play computer and video games. I also play golf. |
|
betty Member Female 28 years old |
About Me
i am not a child but i have a child with marfans. she has subluxated lens and mitral valve prolapse. i am just trying to find other kids her age or close to her age with marfans. she is 5. |
|
Clara Member Female 19 years old |
|
|
NicholeJ Member Female |
|
|
SammieBloo Member Female |
|
|
Hollie Member Female |
About Me
hi, my name is Hollie!! I am a dancer. :P im in fith grade and I LOVE it!! |
|
Nicky Member Female |
About Me
My name is Nicole and I am 7 years old. I live in Chicago but I am from Puerto Rico. I love to read and draw fashion designs. I am in second grade and I love Magic Tree House books and to play littlest pet shop. |
|
Josy Member Female |
About Me
My name Is Josefa, but most of my friends call me Josy. i am 30 years old and I was diagnosed with Marfan at age 9. I have two lovely girls Nicole 7 and Melanie 6 and both have Marfan as well. I am the chairperson of the NMF Hispanic Network and I am very proud of you Conner for wanting a space just for Marfan kids. Keep up the great work cause we need more people like you in this world. |
|
Donna Barresi Member Female |
About Me
Hello My Name is Donna and Conner's Mom and I are great friends! we have known each other for a couple of years now we love this family ! Conner Frank and I are proud of you ,you are doing a very great thing for young children and older adults who need help understanding what Marfans is great work sweet heart keep it up! Love Ya Donna |
|
Alanah Member Female |
About Me
|
Get a Free Website at Webs.com!
